Epilepsy, Writing, and Choices

One day I was hanging out in the hallway of the middle school with some other mommies, waiting for all the sports practices to be over so we could shuttle our kids home.

These two other moms standing next to me were talking about diets and diabetes. They were both on Weight Watchers. One mom had lost tons of weight. The moms talk about the effect of weight on piercing private places and all this incredibly personal stuff.

And I am completely uptight so I basically listened with my mouth hanging open while backing up a step whenever I thought that they wouldn’t notice me backing up a step.

Then they started talking about sugar and sugar substitutes (Splenda and Aspartame).

One mom said, “That Aspartame. I stay away from that stuff. It makes the back of my throat feel funny. I think it does something to rats.”

So I said to the ladies who were just thirty seconds earlier talking about private part piercings, “Aspartame gives me seizures.”

I swear both their mouths dropped open and they both actually stopped talking, which was a big deal, because they NEVER stop talking.

And I learned: You can talk about your diabetes, your husband’s joy stick, your own special piercings, your kids’ bed wetting, but you can’t talk about epilepsy.

And, this? This just totally sucks.

Because, I’m someone who is really, really lucky. I know what makes me have seizures so I avoid those things, but other people aren’t lucky at all.
About one person in every 50 will have epilepsy at some point in his/her life. And they don’t always have the choice of disclosure, and they just have the stigma.

So? What does this have to do with writing?

Lately, I’ve been thinking about the choices I’ve made in the books I’ve written. With Belle, the protagonist of Tips on Having a Gay (ex) Boyfriend, I made her a member of Amnesty International for really important reasons. I also gave her seizures, the same kind of seizures I have, caused by the same thing.

Her epilepsy is not a part of the plot. It’s not a part of the character development. But it’s there.

And, no matter how bad my book is, or how good, or that it won awards or made me a traditionally published writer, I am really, really glad I made that choice for Belle.

Gabby’s Monday Motivation

Good Morning!

The world? It can be scary.

But put on your best warrior face.

Go surprise them with your kindness & how fine you are.

Look at you!

You’re so shiny.

Let the world see that. Let the world see you. Face that scary with beauty. You’ve got this.

Gabby Dog

Big News!

I’m about to publish a super cool adult novel. Gasp! I know! Adult! That’s so …. grown-up? I’ll be sending out more news about this soon!

COOKING WITH AN AUTHOR

This week’s Cooking With an Author – vegetarian recipes with a quirky, author twist is here. It’s all about hangover burritos. You do not have to be hungover or to ever have had alcohol to enjoy them.

DOGS ARE SMARTER THAN PEOPLE PODCAST

Last week’s podcast

This week’s podcast link.

LEARN WITH ME AT THE WRITING BARN!

The Write. Submit. Support. format is designed to embrace all aspects of the literary life. This six-month course will offer structure and support not only to our writing lives but also to the roller coaster ride of submissions: whether that be submitting to agents or, if agented, weathering the submissions to editors. We will discuss passes that come in, submissions requests, feedback we aren’t sure about, where we are feeling directed to go in our writing lives, and more. Learn more here!

“Carrie’s feedback is specific, insightful and extremely helpful. She is truly invested in helping each of us move forward to make our manuscripts the best they can be.”

“Carrie just happens to be one of those rare cases of extreme talent and excellent coaching.”

IN THE WOODS – READ AN EXCERPT, ORDER NOW!

My new book, IN THE WOODS, is out!

Gasp!

It’s with Steve Wedel. It’s scary and one of Publisher’s Weekly’s Buzz Books for Summer 2019. There’s an excerpt of it there and everything! But even cooler (for me) they’ve deemed it buzz worthy! Buzz worthy seems like an awesome thing to be deemed!

Order this bad boy, which might make it have a sequel. The sequel would be amazing. Believe me, I know. It features caves and monsters and love. Because doesn’t every story?

ART NEWS

Buy limited-edition prints and learn more about my art here on my site.

PATREON OF AWESOME

Get exclusive content, early podcasts, videos, art and listen (or read) never-to-be-officially published writings of Carrie on her Patreon. Levels go from $1 to $100 (That one includes writing coaching and editing for you wealthy peeps).

Check it out here.

WHAT IS PATREON?

A lot of you might be new to Patreon and not get how it works. That’s totally cool.

New things can be scary, but there’s a cool primer HERE that explains how it works.

The short of it is this: You give Patreon your paypal or credit card # and they charge you whatever you level you choose at the end of each month. That money supports me sharing my writing and art and podcasts and weirdness with you.

Author: carriejonesbooks

I am the NYT and internationally-bestselling author of children's books, which include the NEED series, FLYING series, TIME STOPPERS series, DEAR BULLY and other books. I like hedgehogs and puppies and warm places. I have none of these things in my life. View all posts by carriejonesbooks

Jason Gallaher, author of WHOBERT WHOVER, OWL DETECTIVE

Writing Coach of Your Dreams

Carrie is the writing coach I always dreamed of having. She has such a great balance in her feedback between singing your praises at what is working and giving you honest criticism at what still needs development. Carrie goes above and beyond in her editorial letters, giving very clear and detailed feedback, and her eagerness to answer any questions makes the whole experience of critique—which can be a very vulnerable experience—make you feel like you’re with a trusted friend that you’ve known for years (even though you just met).

Nancy Stone

Stellar Writing Coach

Carrie is not only whip-smart, savvy, and insightful, she is kind, generous, and real. A stellar writing coach and human being, she gives me priceless creative and professional guidance, but most of all she gives me hope. Her joyful, honest approach to writing is a bright and guiding light.

Michelle Ames

Stellar Writing Coach

Julie Herman

Encouraging Feedback

I met Carrie through an online course offered through the Writing Barn. She was a thorough reader of our work, giving both positive and encouraging feedback. Any fixes she offered were on point and gently given. I felt that my writing grew significantly during the time I spent under her wing.

Stefanie Chou

MAKES IT EASY

I’ve worked with Carrie on multiple novels and she is a wonderful mentor! She is a great teacher and provides excellent feedback with examples, allowing me to learn and grow as a writer. She usually responds with feedback quicker than the agreed time, which is always nice. The best thing about Carrie though is that she is so encouraging. Sometimes it’s hard to have your work critiqued, but Carrie makes it easy. She is so good at heaping on praise while also giving constructive feedback, so it makes you excited to revise, rather than want to give up. I highly recommend her!

Lauren Haynes

EXPLORE YOUR STORY’S SOUL

It is a blessing Carrie is willing to share her insights and talents with others, because she is a powerhouse of a coach who pushes you to be the best writer you can be. There were times where I was so frustrated with my novel I felt like quitting, and Carrie pulled me from the bog of eternal revisions and dead-ends into a place of hope. She invigorated me to write and write better. Carrie inspired my growth as a writer and a person. She showed me it’s okay (actually, it’s great) to embrace my quirkiness. She tore down walls I didn’t know I had built and gave me the foundation to be a confident writer with direction.

Her feedback centers on developing your authentic voice. She doesn’t try to make you write like anyone else and applauds your uniqueness. She encourages you to push boundaries and explore the soul of your story. She is extremely attentive to character development and plot structure, as well as how those elements resonate with the intended audience and reveal the author’s purpose. She celebrates powerful writing with specific feedback on what works and why it works just as often as she advises on revisions to improve the story. She asks meaningful questions, offers clear examples, and supplies diverse resources to provoke the author to transform their stories in ways they may never have otherwise. She has an innate sense of the heart of a story and digs into its core as if the writing were her own.

I could not more strongly recommend Carrie as a writing coach, because she cares fiercely about your writing, works tirelessly to improve your story, and nurtures you as a writer. She is the coach, the cheerleader, and the team all in one. If you want to get out of your rut or become a better writer, Carrie is the person you want to have by your side.

Wendi Kepplinger

Shrinks Fear

Carrie has a gift of encouragement in its truest sense–she searches for what is good in a writer and grows it, she provides perspective that shrinks fear back to size, and she nourishes the kind of confidence and hope so vital for a creative work. Even her criticism is gently done. She is also unfailingly funny! Her comments keep discussions fun and light and create a safe space for people to share and grow. It is clear that she cares and wants our books to succeed.

Cathy Carr

Gentle Encouragement and an Occasional Kick in the Pants

One of the things I enjoyed the most about working with Carrie is that she helped me write the book I wanted to write, not the book she would have preferred I write, or the book she would written in my place. She was vested in helping me express my vision as a writer and as a human being.

One special thing about Carrie as a writing coach and teacher is her understanding of writing psychology. She’s well familiar with the pits of uncertainty and the swamps of despondency a writer can step into, and seems to know just the right thing to say to get the struggling person going again, from gentle encouragement to straight-ahead course correction to even the occasional kick in the pants.

Trista Wilson

A Light for Other Writers

When working with Carrie, I can feel that she is genuinely invested in helping me make my writing the very best it can be. She freely shares her own writing experiences, including the struggles, which helps me not feel alone in those tough moments. She is so positive and encouraging while also giving very specific and thoughtful feedback to help my writing shine. Carrie is truly a light for other writers.

Patti Brown

Positive and Uplifting and Funny

I have known Carrie Jones for many years, and I’ve now had the pleasure of working with her in a professional capacity. Carrie was my writing coach through the WRITE, SUBMIT, SUPPORT program at The Writing Barn.

As a coach and support person, she was phenomenal. I greatly appreciated Carrie’s enthusiasm towards me and the other students. She took the time to know each of us. She was positive and uplifting in her messages, and funny, too!

Carrie is also a skilled writing teacher, honing in on the subtlest of details while also keeping the big picture of the story in view. She found the deficits in my story and was able to provide suggestions for solutions without being negative. She understands the difficulty writers encounter in this business and is always ready to help–whether by lifting our spirits or providing resources. I enjoyed having Carrie as my coach and I would highly recommend her to other writers.

Sara Crawford

By Far One of the Best

I was in the Write. Submit. Support class from The Writing Barn that was led by Carrie, and it was exactly what I needed. I’ve worked with a lot of different writing teachers and mentors in college classes, my MFA program, a playwriting apprenticeship, and various workshops and residencies, and Carrie was by far one of the best. Her feedback on my writing was extremely helpful but also encouraging and uplifting. She gave us a lot of thought-provoking and beneficial information in the monthly classes that helped me to see my writing from a different perspective. Every month, after our classes or after I received notes from her, I was inspired not only to write and improve my craft but to create in general–to write fiction, to write songs, to write plays, and to write content that would help other creative people and artists.

I also love how supportive Carrie is. She takes the time to really listen to you, encourage you, and support you, no matter where you are in your writing career or what your goals are. I also appreciate that she understands that everyone’s publishing path is different, and I was so grateful that I could turn to her for advice and support as I had to make some difficult decisions about my own career. I miss WSS now that the class is ofter, but fortunately, Carrie continues to produce informative and uplifting content for creatives every day–from her blog posts to her podcasts to her motivational thoughts posted alongside adorable dog photos on social media–and she inspires me to do the same. For anyone looking for a writing mentor/teacher/coach, I can’t recommend Carrie enough.